The GI PA (Analissa) asked me to email her the photos I had on my phone of Pacen's diapers, boating and purple hands and feet. She replied back the next day and said she is having her nurse (Myra, who is awesome!) get Pacen's sweat test schedule for Monday morning on the 18th of Feb. His allergy appointment is the same day at 1130. We will also be getting more blood work and stool samples ran to ensure that our next trip up is really productive with Dr. Noel (New GI) and Dr. Johnson (Rheumatologist). Analissa said Dr.Noel's schedule was booked for the 18th, but she was going to put us in there if there was a cancellation, and that I should be expecting a call from Myra this week to get it arranged. These appts are still a month out, so we will have plenty of time to arrange and rearrange the schedule.
Levi contacted the EFMP coordinator, and I think we are going to just stay in Alamogordo and continue going to Albuquerque for Pacen's care. We really are enjoying UNM Hospital & Specialty clinics, the allergist and visiting Albuquerque rather than delaying the process, having tests repeated and essentially starting fresh again. I think that would cause more harm than good.
Pacen has his 15 month well baby appointment tomorrow! I can't wait to see if any of this formula is helping him gain! :) I will update on his appt with Dr. H tomorrow.
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