GI & Rheumy in May

Well, another update for 'ol Pay Pay.

GI: he's only gained 2 oz in the last 3 weeks, but at this point, he has some reserve so that tiny gain wasn't an issue. The bulge we thought was a hernia, is actually not a hernia. It is called diastasis recti. Just the muscle wall isn't connected together in the middle. Pacen's is large, but the GI said he won't need it repaired and he even has one, played college baseball and was in the Army for 32 years with no problem. As long as he doesn't get a hernia in that area, it is ok. As for his constipation and impactions. We are just to keep with the miralax and not change the dose this time once his poop gets soft like we tried before. It isn't working for him. He did get one part of his impaction out today in their office, so they got to keep that little stink bomb.

Rheumy: Oh Dr. Johnson. We will just say he is extra thorough in his examinations. Our 2 o'clock ended up as a 4 o'clock. He said that Pacen's reynauds disease is not due to an underlying auto-immune disease. It is by itself. He said it is hard to tell if it will get progressively worse, or get better, but it will be with him for the rest of his life. He said it was rare for a baby to have it start so young. Upon checking Pacen's joints, he said Pacen's ankles are still pretty tight and thick feeling. Since they are not warm or inflamed, it is not arthritis or anything rheumatology related. We did hold off on the neurologist at UNM because we were so bombarded with dr appts, that adding another at the time was getting to be too much. I really think cerebral palsy could still be on the table for him, its static, so it won't get worse. I will check and see of his Neuro referral is still active and go from there.

I think that is all from today. Pacen didn't nap all day, so he's finally napping now! Tomorrow we will go and see Dr. Clayton and see what else Pacen is allergic to !

Levi and MJ hit up the pool twice today already! Lucky!